Oh, there is much I want to do in 2017. Find a cure for ALS. Advocate for social justice. Travel to Europe. Walk. Write a book. There is much to do, but I'm not resolving to DO anything. My new... Continue Reading →
Much of my emotional suffering is a result of unmet expectations. The visible suffering of ALS is obvious in loss of ability to control my body. Sure it's frustrating for me and everyone who loves me. So we slow down,... Continue Reading →
Some is my own doing; some is a consequence of declining mobility and function. But no doubt, my world is shrinking. My constant go, go, go has been reduced to a single go and rest the remainder of the day.... Continue Reading →
You separated me from most of the animal kingdom, my opposable thumbs. Open a shampoo bottle Pick up a fork Pull up the covers Turn the page Text a friend Mute the TV You are slipping away from me. Squeeze the toothpaste... Continue Reading →
The Golden Gate Bridge is to the left and Alcatraz is to the right. Oh, the stories they could tell. This is my view of San Francisco for the next four days as I participate in a Phase 1 (first... Continue Reading →
Most of my days are spent doing the things I love with people I love. Pictured clown noses are a case in point. Other than the occasional dental cleaning or medical appointment, I spend most of my energy on the people... Continue Reading →
The upside of not being able to lift anything heavy is that my manicure stays picture perfect for weeks. My shoulders are weak so I keep my elbows tucked by my side. In essence, I have T-Rex arms. You may notice I... Continue Reading →
I've been battling strange urges to walk outside and get the mail. I want to walk into the kitchen and steal Steve's Peanut M&Ms. My mind tells me, "Hey, it's ok, just get up and walk!" Of course my body... Continue Reading →
Years ago I read the The Four Agreements: A Toltec Wisdom Book by Miguel Ruiz, and forever changed how I navigate life. The pan-theological introduction challenged my sensibilities. Ruiz describes Toltec wisdom not as a religion but rather a way of... Continue Reading →
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