The upside of not being able to lift anything heavy is that my manicure stays picture perfect for weeks. My shoulders are weak so I keep my elbows tucked by my side. In essence, I have T-Rex arms.
You may notice I use two hands to lift a glass. You may notice my hands or arms shake. I may ask you to hand me something that I can’t lift with my arms extended. It’s all part of the T-Rex gig.
My shirts are sporting stains because the food doesn’t always make it from the plate to my mouth. My handwriting has regressed as I have some atrophy in my hands. It’s weird. The base of my thumb has flattened out where is used to be rounded muscle. I find myself rubbing my fingers over the now apparent thumb bone.
It’s frustrating for sure. I drop things all the time. I’m in disbelief that my arms and shoulders are losing this much strength. Yet it’s part of the ugly progression that is ALS.
There is still much I can do with T-Rex arms. I can type. I can drive my van with my hand controls and steering wheel knob. I can drive my power chair like a boss. I can hold a book and turn the pages as I read to my grandkids. All this with my manicure intact. I’m grateful for the strength and movement I still have.
I’m Forgiven and Free and rockin’ the T-Rex arms
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
— Psalm 73:26
February 16, 2016 at 3:22 am
I’ve one T-Rex arm. Pretty much use the two hand method for drinks I may ask assistance if its hot. However the feet are hard to find when I call to them. So caregivers are there with a smile, usually. My bib ( dish towel for now but you know the bib in the closet hidden from view.) keeps me looking decent. If I do accidentally make a mess, if I can get away with it I’ll sneak away and change. Tell her I getting ready for bed early. I get a strange look at 2PM. Buttons on somedays just beg to get ripped off. Opening little caps for kids snacks requires a kid. I call on my big kid. What an awesome disease, awesome experiences, and best of all AWESOME people.
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