I'm grateful the National ALS Association gave me a platform to be heard.
I’ve never known such pain as that of my broken heart, a physical presentation of indescribable grief. My ALS journey, a treatise on grief, started with the loss of cute shoes, then my career and mobility. Sometimes I threw things... Continue Reading →
I'm done playing nice. I’m supposed to be dead. This is an urgent call to action. Keep reading. I need your help! With an ALS diagnosis in 2013, I was given 2-5 years. I’m alive but being protected to death... Continue Reading →
This is for people who are going through a difficult time and could use the help of your community or for people who know someone who is. First, let me talk to the people who are going through a life... Continue Reading →
Living with ALS presents challenges and choices, ranging from how to safely get through a morning routine to deciding whether to live with mechanical ventilation or die. Shakespeare was right; To be or not to be, that is the question.... Continue Reading →
Unpublished blog posts sit abandoned in my draft folder. One is bitter; Another begs victim hood. That is not what I want to put out into the universe. So here I sit, gazing at my keyboard, trying again. I’ll just give it to you straight.
I was sprinkled a Methodist, confirmed a First Congregational, dunked an evangelical, and spent years in between with the Presbyterians and non-denominational folks. My life-long Christian tradition provided encouragement, comfort, community and opportunities to serve others. For this, I'm grateful.... Continue Reading →
I've been on this ALS journey for nearly five years. That alone makes me one of the lucky ones as half of those diagnosed die within two years. And, thanks to the VA, I have access to the equipment and... Continue Reading →
It felt like God gave me a gentle kiss on the forehead. This morning I was waiting for the ALS Advocacy conference to begin and in walked Chrissie, my sister from another mister. We embraced for a moment longer than... Continue Reading →
Shelly Hoover 
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