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Shelly Hoover

Author Educator Advocate

Author

Shelly Hoover, Ed.D.

Wife, mother, grandmother, daughter, sister, friend, educator and ALS advocate living with joy and freedom in spite of a terminal diagnosis.

My Shrinking World

Some is my own doing; some is a consequence of declining mobility and function. But no doubt, my world is shrinking. My constant go, go, go has been reduced to a single go and rest the remainder of the day.... Continue Reading →

Ode to Opposable Thumbs

You separated me from most of the animal kingdom, my opposable thumbs. Open a shampoo bottle Pick up a fork Pull up the covers Turn the page Text a friend Mute the TV You are slipping away from me. Squeeze the toothpaste... Continue Reading →

Hey White Friends — Here’s Our Chance 

Are you tired of being called a racist, homophobic, xenophobic bigot? Now's our chance to do something about it. We implore leaders in the Muslim community to denounce the terrorist actions of extremists. We demand that leaders in the African... Continue Reading →

A Guinea Pig’s Room with a View

The Golden Gate Bridge is to the left and Alcatraz is to the right. Oh, the stories they could tell. This is my view of San Francisco for the next four days as I participate in a Phase 1 (first... Continue Reading →

Right to Die

I don't want to die. If fact, I'm fighting to live! The End of Life Option Act just became law in California. A patient with six months to live has the option the obtain life-ending medication. Here's the problem -- the... Continue Reading →

A Dad’s Wisdom 

During an interview for the SIU Alumni Magazine I was asked, "At what point did you accept the fact that you had ALS?" Accept it? I didn't know how to answer.  Later my Dad (the Doctor of Philosophy) explained to... Continue Reading →

White Flags 

Steve and I are on day two of a month long road trip. We were cruising through the Utah salt flats this morning and a Chris Tomlin song made my eyes leak. White Flag.  "We raise our flag, we surrender,... Continue Reading →

A Hashtag is Worth a Thousand Words

#ShellysPCT Scott will begin his journey of a lifetime in just a few short weeks. Beginning May 1st is going to hike 2,663 miles on the Pacific Crest Trail. He is hiking for those of us who can't, raising awareness... Continue Reading →

Finding Joy in the Little Things

Most of my days are spent doing the things I love with people I love. Pictured clown noses are a case in point.  Other than the occasional dental cleaning or medical appointment, I spend most of my energy on the people... Continue Reading →

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