My life isn’t what I expected. Who would have thought my arms and legs would be merely ornamental? I’m not going to lie, being a quadriplegic isn’t easy. Wow. I need a minute to let that sink in, my arms and legs are no longer functional. It’s not the end of the world. I can still live my best life, regardless.

You can read here how I mourned the loss of being the cookie making grandma I thought I’d be — but I’m done mourning.  With the support of my family and friends, I’ve adapted to a new normal. Check out the picture, I’m playing with my 3½ month old grandson. I’m not able to hold him so Grandpa put baby’s bouncer over my legs. Voila! Twenty minutes of nursery rhythms and giggles. Pure joy.

What does living my best life look like?

  • I write a work of fiction celebrating the power of sisterhood.
  • I participate and advocate whenever I can to find an effective treatment or cure. 
  • I celebrate that I’m at year six with a two to five year prognosis.
  • I surrender to the fact that I need help with everything except breathing and talking. ALS hasn’t taken those yet. But if it does, I’ll adapt to that too.
  • I process frustration and grief when they come, then I punch them in the face.
  • I surround myself with positive people, my tribe.  
  • I practice mindful meditation to stay present and grateful in this beautiful gift of life.  
  • I remember God has a divine purpose for my life — that is to encourage and pour love and acceptance into every person I meet. I’m not there yet, I’m a work in progress.

Are you going through the motions of this life, waiting for your best life to begin when _______? Fill in the blank. Stop waiting. Start now. What does living your best life look like? Don’t compare yourself to others. Don’t listen to what society says. Live YOUR best life. Drop the excuses. Find your tribe who will support you and get busy living your best life, regardless of circumstance.

What does  living your best life look like? Comment so I can learn from you.

I’m forgiven and free and living my best life, regardless.